Dearest One tough mother,

I recently got back in contact with an old friend that i was very good friends with in my late teens/early 20’s. She has a 10 year old step daughter and a 18 month old son with a terminal disease- cystic fibrosis. I love this little boy so much, and my kids have become so attached to him, and him to them especially my daughter, you would think we have been hanging around him since birth but really it’s only been around 4 months. My question i am going back and forth on is, should i tell my kids that he is sick and could possibly/ most likely pass at an early age so that my kids are prepared? I’m sorry i hate to put it that way but the sad out come is what is most common with this disease. Or should i just not say a word and when/ if the time comes explain why he passed. What do you think?

Dear Mother,

I am so sorry for this poor baby and your friend, his mother. Children with such illnesses as cancer, cystic fibrosis or any childhood terminal disease is do hard and truly so sad.
In my opinion yes, tell your children he has an illness but don’t elaborate on it too much or on what MAY happen. My sister’s husband’s sister had a son with cystic fibrosis who lived until he was 21 years old. Children are to young to understand a long and lengthy medical explanation and being told someone they love could die, when the person appears fine, may create fear and anxiety.
However, if the little boy suddenly takes a turn for the worse, then slowly and gently explain to your daughter he was born with a very serious condition. Let her ask questions and I am sure one may be “will he die?”
To that question I would say, “there is a chance when someone has this serious disease they can, however everyone is doing everything that they can to help him”.
Medical advancements happen daily, some big and some small. We all have to hope and pray that they come sooner than later.
I will say a prayer for this sweet little boy and hope I truly hope I helped you with your question.

One Tough Muther

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